Dear Bay Ridge Catholic Academy & St. Anselm Parish Families,
Many of you have supported our family and our mission in recent years, and we are deeply grateful. Your kindness has helped us move crucial research forward for our son, Liam, and for all individuals living with the rare genetic disorder 5p– (Cri du Chat) Syndrome that he was diagnosed with as an infant.
Because there are still no approved treatments for this condition—and families like ours continue to face an uncertain future—we remain committed to doing the research that brings treatments within reach.
On Saturday, January 31, 2026, we will be hosting Raise the Volume for 5p– Syndrome, an adults-only evening of food, music, raffles, and hope. Together, we aim to raise $200,000 to screen 5,000 potential treatments on 5p– brain cells, helping researchers identify which options may ease symptoms and improve quality of life for children like Liam.
If you are able to join us, we would be grateful to have you there. Full event details—as well as tickets and sponsorship opportunities—are available at the link below.
Thank you for your continued kindness, your prayers, and your support of our family.
Raise the Volume for 5p- Syndrome!
Amazon Wish List for Event
With gratitude,
Megan & JC Leston
Parents of Liam, Claire (Class 5B), Anna (Class 2A), Emmy (Class 1B), Colin (UPK-3A)
Founders, Cri du Chat Research Foundation
