Dear eXtraOrdinarY Families,
Happy Holidays to all our incredible families! We are so grateful for your participation in our clinic and research programs and hope that all your amazing kids have a joyful and memorable holiday season.
As we look ahead, 2025 marks some exciting milestones: Year 9 of the eXtraOrdinarY Babies Study, Year 5 of the INsighTS Registry, and Year 3 of the GalaXY Registry. Being part of your child’s growth and care is an incredible privilege that we deeply appreciate. We also acknowledge the extra time and effort it takes to participate in research. Your commitment makes a difference, and we are honored to have your support.
A special thank-you goes out to our amazing research teams in Colorado, Nemours, and all the clinics involved in the INsighTS and GalaXY registries. Your dedication, behind-the-scenes hard work, innovative ideas, and compassion are the driving forces behind these programs. Your efforts, though often unseen, are truly invaluable.
Stay tuned in early 2025 as we share exciting updates on new research findings and our continued work to communicate these results to pediatricians, genetic counselors, geneticists, and obstetricians. Together, we are making strides that will benefit families for years to come.
Wishing you a wonderful holiday season and a bright start to the new year!
Sincerely,
Dr. Nicole Tartaglia & Dr. Shanlee Davis
